| 书目名称 | Research Partners with Lived Experience | | 副标题 | Stories from Patient | | 编辑 | Andrew Stranieri,Grant Meredith,Selena Firmin | | 视频video | | | 概述 | Acts as a bridge to foster collaborations between patients who have lived experience and researchers investigating them.Discusses how patients and survivors can share valuable experience into future a | | 图书封面 |  | | 描述 | This book aims to foster collaborations between patients who have intense lived experience with a medical condition or family violence and researchers investigating them. Inviting patients or survivors into the research team is found to have significant advantages, and chapters review the literature on the benefits they can bring to investigative research teams. The collaboration can take place at multiple stages of research from helping to research design, participating in co-investigators, contributing to the interpretation of results, etc. The conditions addressed in this book include medical conditions from anxiety, postural orthostatic tachycardia syndrome, lupus, asthma, chronic kidney disease, etc. The authors are higher degree students, academics, and active research team members who share their experiences. This is be instrumental in helping patients and survivors decide whether to transition to research. It will also support research team leaders in determining how to benefit from the new perspectives researchers with lived experience bring. The personal narratives provide insight into the challenges and rewards of having lived experience while conducting research.. . Thi | | 出版日期 | Book 2024 | | 关键词 | Patients as research partners; Illness; Disease management; Patient experience; Collaboration; Research t | | 版次 | 1 | | doi | https://doi.org/10.1007/978-981-97-0033-2 | | isbn_softcover | 978-981-97-0035-6 | | isbn_ebook | 978-981-97-0033-2 | | copyright | The Editor(s) (if applicable) and The Author(s), under exclusive license to Springer Nature Singapor |
The information of publication is updating
|
|
发表于 2025-3-21 18:19:03
