| 书目名称 | Rare Diseases in the Age of Health 2.0 |
| 编辑 | Rajeev K. Bali,Lodewijk Bos,Simon Ibell |
| 视频video | |
| 概述 | Focuses on various factors associated with orphan diseases.Highlights the opportunities and challenges through information technologies and Health 2.0.Explores economic possibilities.Written by an int |
| 丛书名称 | Communications in Medical and Care Compunetics |
| 图书封面 |  |
| 描述 | This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to treat or prevent it. It is estimated that 6,000-7,000 orphan diseases exist today; as medical knowledge continues to expand, this number is likely to become much greater. The book highlights the opportunities and challenges in this increasingly important area. The book explores new avenues which are opened by information technologies and Health 2.0, and highlights also economic opportunities of orphan disease medicine. The editors of this new book have international experience and competencies in the key areas of patient empowerment, healthcare and clinical knowledge management, healthcare inequalities and disparities, rare diseases and patient advocacy. |
| 出版日期 | Book 2014 |
| 关键词 | Disease Data Mining; Electronic Health Records; Electronic Health Records; Genomics and Biotechnology; H |
| 版次 | 1 |
| doi | https://doi.org/10.1007/978-3-642-38643-5 |
| isbn_softcover | 978-3-662-52233-2 |
| isbn_ebook | 978-3-642-38643-5Series ISSN 2191-3811 Series E-ISSN 2191-382X |
| issn_series | 2191-3811 |
| copyright | Springer-Verlag Berlin Heidelberg 2014 |
发表于 2025-3-21 18:37:12
