Titlebook: Rare Diseases in the Age of Health 2.0; Rajeev K. Bali,Lodewijk Bos,Simon Ibell Book 2014 Springer-Verlag Berlin Heidelberg 2014 Disease D

NICHE

Industry Perspectives on Orphan Drug Developmentvelopment in biotechnology, the various factors necessary for commercializing orphan drug candidates, phases and trials of clinical development and factors which may affect commercialization of a product. The chapter concludes with implications for patients and families.

要塞

indifferent

narcotic

Health 2.0 and Information Literacy for Rare and Orphan Diseasesticular, the chapter uses a real life case study to consider the information experience of a person in the early stages of a rare condition, both pre and post diagnosis. It also reviews the information experience of the health professionals responsible for their care. The chapter addresses common ba

到婚嫁年龄

Social Media and Engaging with Health Providersarch and patient support. While social media use in healthcare is currently in its infancy, there is enormous potential for applications dedicated to accessing health information, specialist clinical knowledge and participating in the latest research initiatives. These benefits are amplified for pat

是限制

缓和

The Role of Social Media in Healthcare: Experiences of a Crohn’s Disease Patientmporary IT tools and techniques can be used effectively to actively engage patients in their own care. Examples of patient-to-patient interaction via new social media are provided. The concept of the “i-patient” is introduced and the need to empower both patients and healthcare professionals is sugg

失望未来

OMIT

Anticlimax