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Titlebook: Genetic Testing and the Governance of Risk in the Contemporary Economy; Comparative Reflecti Lara Khoury,Adelle Blackett,Lukas Vanhonnaeker

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Genetic Testing, Insurance and Employment in the UK: Is the Regulatory Regime Fit for Purpose?e UK. It focuses on the characteristic features of the UK regulatory regime, namely the decision to avoid including “genetic characteristics” within the general anti-discrimination legislation, and instead to regulate the use of genetic test results by insurers and employers through soft law guidanc
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Genetic Discrimination in the United States: What State and National Government Are Doing to ProtectGenetic Information Nondiscrimination Act (GINA), discusses the Act’s definition of genetic discrimination, and provides an overview of state laws aimed at preventing genetic discrimination. The chapter then turns to the use of genetic information in the workplace and examines how GINA limits the ab
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Regelwerke und das Integrationsdilemma,isk. The development of genomic medicine promises much, through the ability to identify risk on an individualized basis. However, individualization inevitably raises concerns about privacy protection, all the more pressing when genetic testing is not a fully refined, predictive technology. The indiv
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https://doi.org/10.1007/978-3-319-62986-5g and, more broadly, genetic information is protected in Belgian law. One of the problems concerning the legal framework is the lack of conceptualization of the concepts “genetic testing” and “genetic information.” Besides the definition of concepts, the possibilities of disclosure and access to med
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Ruediger Lohse,Ove C. Mørck,Alexander Zhivovdiscrimination in Canada, the new Act is the only law that specifically addresses genetic discrimination in the employment and insurance contexts. It makes it unlawful to require genetic testing or the disclosure of results of genetic tests as a condition of employment or insurance. This chapter dis
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https://doi.org/10.1007/978-3-030-00608-2tive vacuum is filled by recourse to international, European, and national texts, of both a hard and soft law nature. The text begins by presenting different definitions of the terms “genetic testing” and “genetic data.” Then, it examines the need for special status recognition for genetic data and
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