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Titlebook: Ethical Issues in Community and Patient Stakeholder–Engaged Health Research; Emily E. Anderson Book 2023 The Editor(s) (if applicable) and

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Plasmid DNA Supercoiling by DNA Gyrase,y on research projects guided by a community-based participatory research approach. Health disparities research necessarily focuses on communities that have encountered historical and ongoing racism, inequities, and discrimination. Within this dynamic, fluid context, study protocols superimpose rigi
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Kenneth N. Kreuzer,Sue H. Neecees of people with developmental disabilities. The goal should be to create a genuine sense of belonging and that fosters respect and meaningful inclusion. The authors discuss how building strong personal relationships, providing disability accommodations, and following through on promises to co-crea
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Masahiro Kusumoto,Tetsuya Hayashiives is to serve as gatekeepers; in this role, they monitor, and in some cases even determine, what research does and does not get conducted with their communities. Such gatekeeping can prevent “helicopter” research and community research fatigue. Gatekeeping can also aid in identifying and mitigati
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Craig D. Woodworth,Joseph A. DiPaoloms of research involving human ‘subjects.’ Drawing on HIV community-based research (CBR), we consider established risks, such as physical and emotional harms that may impact individual research participants as well as social harms that may impact individuals, organizations and coalitions, and entire
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DNA Vaccination/Genetic Vaccinationhow data are used, and (3) deciding what is published. We begin with the legal and regulatory policies of universities and sponsors around data ownership and data sharing. We then discuss the role of principal investigator(s) in a study and/or partnership leaders as data stewards for the development
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