Titlebook: Ethical Issues in Community and Patient Stakeholder–Engaged Health Research; Emily E. Anderson Book 2023 The Editor(s) (if applicable) and

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The Power of Personal Narrative: My Experience with SACHRP, the FDA, and BioethicsRepresentative for the U.S. Food and Drug Administration (FDA), the author reflects on the challenges and rewards of sharing personal narratives in service to patient advocacy. Special attention is given to the ethical dimension of narratives; the ways that stories can heal, represent, and teach; an

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Rethinking Risks and Benefits in Stakeholder-Engaged Research: Lessons from HIV, Substance Use, and ms of research involving human ‘subjects.’ Drawing on HIV community-based research (CBR), we consider established risks, such as physical and emotional harms that may impact individual research participants as well as social harms that may impact individuals, organizations and coalitions, and entire

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Introduction: What We Talk About When We Talk About the Ethics of Engaging Patient and Community Sta scholarship in interesting and important ways. This volume is an effort to bring together, in one place, important perspectives on the ethics of stakeholder engagement in health research. Here, ethics, patient and community stakeholders, and health-related research are all conceptualized broadly.

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Kenneth N. Kreuzer,Sue H. Neecete products that can positively impact people with developmental disabilities are some ways to foster this positive environment. These actions can improve accountability and are building blocks to ethical community-engaged research with communities of people with developmental disabilities.