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Titlebook: Challenging Assumptions Around Dementia; User-led Research an Rosalie Ashworth,Sue Fyvel,Fred S. Wilson Book‘‘‘‘‘‘‘‘ 2023 NHS Tayside 2023

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发表于 2025-3-21 16:40:04 | 显示全部楼层 |阅读模式
书目名称Challenging Assumptions Around Dementia
副标题User-led Research an
编辑Rosalie Ashworth,Sue Fyvel,Fred S. Wilson
视频videohttp://file.papertrans.cn/224/223540/223540.mp4
概述Offers an accessible resource to support more person-centred, collaborative research in dementia.Presents co-produced dementia research between people with lived experience, academics and health care
图书封面Titlebook: Challenging Assumptions Around Dementia; User-led Research an Rosalie Ashworth,Sue Fyvel,Fred S. Wilson Book‘‘‘‘‘‘‘‘ 2023 NHS Tayside 2023
描述.This open access book explores the expectations surrounding dementia, what it ‘looks like’ and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimer’s disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. ..Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public.
出版日期Book‘‘‘‘‘‘‘‘ 2023
关键词dementia research; participatory methodology; gerontology; ageing; mental health research; biomedicine; ps
版次1
doihttps://doi.org/10.1007/978-3-031-27223-3
isbn_ebook978-3-031-27223-3
copyrightNHS Tayside 2023
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tively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public.978-3-031-27223-3
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https://doi.org/10.1007/978-3-540-34281-6offers some background information about the brain and myths surrounding dementia before taking the different types in turn. We have included some common features of the conditions alongside lived experience. Finally, the chapter explores experiences of diagnosis and questions how we might improve t
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Prinzipien des Sekundärstoffwechselsrt. The chapter looks at how people have had to adjust to working with paid carers and sharing home space. Co-authors share examples of having to fight to be recognised for their expertise and how this can shape current care and future needs.
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,‘You Don’t Look Like You Have Dementia’,look like you have dementia’. The group debates whether it would be best for people to recognise dementia and the ways in which we can raise awareness and educate people. We ultimately wish to reduce the stigma (negative perceptions and being treated poorly) surrounding dementia and those with lived experience.
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