| 书目名称 | The Ethics of Medical Data Donation |
| 编辑 | Jenny Krutzinna,Luciano Floridi |
| 视频video | |
| 概述 | This book is Open Access.Presents an ethical approach to utilizing personal medical data.Provides timely interdisciplinary research on biomedical big data.Pioneers the concept of medical data donation |
| 丛书名称 | Philosophical Studies Series |
| 图书封面 |  |
| 描述 | .This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes...Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. .Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, a |
| 出版日期 | Book‘‘‘‘‘‘‘‘ 2019 |
| 关键词 | Biomedical Big Data; Data Philanthropy; GDPR Health Care; GDPR Medicine; Medical Data Donation; Medical D |
| 版次 | 1 |
| doi | https://doi.org/10.1007/978-3-030-04363-6 |
| isbn_ebook | 978-3-030-04363-6Series ISSN 0921-8599 Series E-ISSN 2542-8349 |
| issn_series | 0921-8599 |
| copyright | The Editor(s) (if applicable) and The Author(s) 2019 |
发表于 2025-3-21 16:27:05
