Titlebook: Sustaining Surveillance:The Importance of Informationfor Public Health; John G. Francis,Leslie P. Francis Book 2021 Springer Nature Switze

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Enhancing Surveillance: New Data, New Technologies, and New Actors, interoperable electronic health records, retained blood spots from newborn screening, biobanks and other genetic databases. patient registries, information gained in research, direct to consumer testing (including genetic testing), smartphones and smartphone apps, wearables and biosensors, and robo

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Public Health, Communities and Consent,ather than efforts to change behavior to improve health? Should either individual or community consent be required for the exercise of surveillance? If community consent is required, what constitutes the community and how might it give consent? This chapter explores these difficult questions about c

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Conclusion,rall. Yet public trust in surveillance is fragile. Sustaining surveillance requires ethical science, transparency, respect for difference, and justice in data use. Otherwise, trust in public health to gather data and use what is learned responsibly will remain at risk.

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Introduction: Why Surveillance Matters,ansparency and oversight are needed to protect individuals against harm and groups against discrimination and stigma. Bringing together expertise from bioethics, law, political science, and public policy, the authors of this volume develop a comprehensive approach to sustaining surveillance in today’s changing, diverse, and unjust world.

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Case Identification and Contact Tracing, such as non-marital sex or with stigmatization of groups. The chapter then explores how contact tracing can be combined with treatment and other support to facilitate warranted trust in the use of this traditional surveillance method.

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Public Health, Communities and Consent,g ways communities may be defined, in terms of political borders, geography, groups, identities, and interests. It also requires nuanced understanding of the different ways communities develop, interrelate, and function.