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Titlebook: Clinical Research Informatics; Rachel L. Richesson,James E. Andrews,Kate Fultz Ho Textbook 2023Latest edition The Editor(s) (if applicable

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Coastal Systems and Continental Marginsto providers to private sector entities to governmental policymakers. Increasingly, the modern clinical research environment relies on the use of informatics tools and methods, in order to address such diverse and challenging needs. In this chapter, we introduce the major stakeholders, activities, a
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Compounds of Amino Acids as Anions,ncology. The National Institute of Health (NIH)‘s programs, particularly the . and the Biden Cancer Moonshot initiatives, have been key enablers. The importance of biospecimens and their derivatives, particularly genomic sequencing and expression data coupled with deep clinical annotation from elect
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,Le basi genetiche dell’obesità,inical research that mandate the use of a Clinical Research Information System (CRIS) and distinguish its functionality from that provided by electronic medical record systems. We then describe the operations of a CRIS during different phases of a study. We finally discuss briefly the issues of stan
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Anatole Tchikine,Mohammad Gharipourprocesses. It will be critical to accelerating learning health cycles and broadening the knowledge that can be used to improve healthcare and patient health outcomes. In this chapter, data sharing refers to sharing data and metadata between partners and systems (not necessarily sharing of research r
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Mohammad Gharipour,Anatole Tchikineraining in methods for achieving, assessing, or controlling the quality of research data—topics central to clinical research informatics. This chapter covers the basics of acquiring or collecting and processing data for research given the available data sources, systems, and people. Data quality dim
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https://doi.org/10.1007/978-981-19-7851-7s, policies, and strategies that are commonly adopted, the functions and roles that are needed to implement these policies and strategies, and the consequent architectural designs that provide both a home for the data and, less obviously, an operational expression of policies in the form of controls
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Salutogenic organizations and changepport the study of the determinants and manifestations of disease and provide a picture of the natural history, outcomes of treatment, and experiences of individuals with a given condition or exposure. It is anticipated that electronic health record (EHR) systems will evolve to capture detailed clin
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