过滤
发表于 2025-3-30 10:09:44
Wichard Woykerials, to improve patient care and healthcare planning. Therefore high quality data of rare diseases registries is considered to be one of the most important element in the establishment and maintenance of a registry. Data quality can be defined as the totality of features and characteristics of dat
思乡病
发表于 2025-3-30 14:54:18
Wichard Woykee disease research, it is a very difficult task for a central, top–down entity to create and fund research for so many different diseases. With the traditional research model, therapies have been developed for less than 500 of these diseases, meaning that more than 9 in 10 diseases do not have any t